This page provides links to useful background information about precision medicine at UCSF and beyond, as well as fact sheets and downloadable visual resources for media.
Recent UCSF Reports & Publications
Precision Medicine: An Action Plan for California: A statewide, sixteen-member committee released Precision Medicine: An Action Plan for California in December of 2018, providing a policy road map and framework to advance precision health and medicine.
Precision Public Health Summit Report
The report, is a product of the Precision Public Health Summit, held in June 2016.
Precision Medicine: Beyond the Inflection Point
Sam Hawgood, MBBS; India Hook-Barnard, PhD; Theresa O’Brien, PhD; Keith Yamamoto, PhD
Science Translational Medicine, Aug. 15, 2015
Toward Precision Medicine: Building a Knowledge Network for Biomedical Research and a New Taxonomy of Disease
National Academies Press, 2011
The report, co-chaired by Susan Desmond-Hellmann, MD, MPH, then-Chancellor of UCSF, laid out the vision and roadmap to achieve precision medicine.
Background Information About Precision Medicine
The White House's Precision Medicine Initiative
Outlines the Precision Medicine Initiative proposed by President Obama in his State of the Union address on January 30, 2015. Includes a description of the initiative, information about the privacy principles being developed, patient stories, and a link to a fact sheet about the initiative.
California Initiative to Advance Precision Medicine
In April 2015, California Gov. Edmund G. Brown Jr. announced the launch of the California Initiative to Advance Precision Medicine (CIAPM). Hosted by UCSF, this partnership between the state, the University of California, and other public and private entities will help build the infrastructure and assemble the resources necessary to advance precision medicine-oriented data, tools and applications.
California Initiative to Advance Precision Medicine Evaluations of projects, 2015-2018
UCSF’s Precision Medicine Fact Sheet Highlighting various Precision Medicine efforts across UCSF
National Reports and Workshop
NASEM Exploring the Current Landscape of Consumer Genomics: Proceedings of a Workshop (2020) - A Workshop. The publication may be viewed here. The Roundtable on Genomics and Precision Health will host a public workshop on October 29, 2019 exploring the current landscape of consumer genomics and implications for how genetic test information may be used in research and clinical care. Discussions may include diversity of participant populations, impact on health literacy and engagement, knowledge gaps related to use in clinical care, and data privacy/security concerns. A broad array of stakeholders may take part in the workshop, including genomics and consumer genomics experts, epidemiologists, health disparities researchers, clinicians, users of consumer genomics research applications, patient advocacy groups, payers, bioethicists, regulators, and policy makers.
NASEM Understanding Disparities in Access to Genomics Medicine - A Workshop: Recorded webcast may be found here and the publication here. On June 27, 2018, the Roundtable on Genomics and Precision Health will hosted a public workshop to examine the gaps in knowledge related to access to genomic medicine and discuss health care disparities and possible approaches to overcoming differential use of genomic medicine across populations. Workshop topics included research on access to genetics and genomics services in medically underserved areas, model programs of care for diverse patient populations, and current challenges and possible best practices for alleviating health care disparities as they relate to genomics-based approaches. The workshop convened diverse stakeholders, which may include community/public health researchers, clinicians, users of health care systems, payers, bioethicists, and policy makers to present their perspectives and participate in workshop discussions.
NIH Strategic Plan for Data Science - As articulated in the National Institutes of Health (NIH)-Wide Strategic Plan1 and the Department of Health and Human Services (HHS) Strategic Plan,2 our nation and the world stand at a unique moment of opportunity in biomedical research, and data science is an integral contributor. Understanding basic biological mechanisms through NIH-funded research depends upon vast amounts of data and has propelled biomedicine into the sphere of “Big Data” along with other sectors of the national and global economies. Reflecting today’s highly integrated biomedical research landscape, NIH defines data science as “the interdisciplinary field of inquiry in which quantitative and analytical approaches, processes, and systems are developed and used to extract knowledge and insights from increasingly large and/or complex sets of data.” June 4, 2018.
